meassociation.org.uk

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The ME Association - The ME Association

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The ME Association - The ME Association

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The ME Association provides support, research, expert information and a helpline for the community of people affected by ME/CFS

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Proprieta Contenuto
locale en_GB
type website
title The ME Association - The ME Association
description The ME Association provides support, research, expert information and a helpline for the community of people affected by ME/CFS
url https://meassociation.org.uk/
site_name The ME Association
image https://meassociation.org.uk/wp-content/uploads/2025/01/MEC-Feb-2025.png

Headings

H1 H2 H3 H4 H5 H6
1 19 3 53 2 0
  • [H1] The ME Association
  • [H2] ME Connect – We're here for you
  • [H2] We're here for you…
  • [H2] The ME Association has been providing expert help since 1980. We understand the challenges faced by people with ME/CFS and Long Covid and believe that nobody should struggle alone. 
  • [H2] Health Crisis
  • [H2] We estimate that at least 404,000 people in the UK have ME/CFS. In addition, 950,000 people unable to recover from a Covid infection could meet the diagnostic criteria for ME/CFS. This could mean that 1,350,000 adults and children in the UK are affected by ME/CFS. It represents a very real health crisis, and we are determined to improve the healthcare that people receive.
  • [H2] The MEA's Clinical Assessment Toolkit App is now here!
  • [H2] Changing attitudes and improving lives…
  • [H2] Membership
  • [H2] Get Involved
  • [H2] Support
  • [H2] Research
  • [H2] Healthcare4ME
  • [H2] Literature
  • [H2] Medical Matters
  • [H2] Donate
  • [H2] The Latest News
  • [H2] ME Association Testimonials
  • [H2] Terminology
  • [H2] Useful Links
  • [H3] Support Line (Freephone): 0808 801 0484
  • [H3] Help Improve Lives
  • [H3] ME Connect Helpline
  • [H4] Rosetta Stone Study – Summary: Three month update
  • [H4] Feedback required on medication for pain in ME/CFS
  • [H4] Sue’s set to blaze a trail that brings hugs to everyone with ME/CFS!
  • [H4] News Medical: Study identifies antiviral protein IFN-γ as a potential biomarker for Long COVID fatigue
  • [H4] The ME Association – Governance Review Update and Organisational Structure: February 2026  
  • [H4] Forward ME: AGM and Guest Lecture, register to attend!
  • [H4] BBC Radio 4: Is the tide turning on ME research?
  • [H4] DHSC Delivery Plan: Actions for NHS England and the Royal College of Physicians
  • [H4] UK ME/CFS Biobank HHV-6 Study: Recruitment in its Final Phase
  • [H4] Update: UK ME/CFS Biobank Steering Group
  • [H4] An Essay on Living with Severe ME
  • [H4] NIHR/MRC Post-Infection Conditions Research Showcase Report
  • [H4] New MEA‑Funded Study: Searching for Biological Markers in ME/CFS and Long Covid 
  • [H4] Medical Xpress: Study shows impaired energy metabolism in the brains of people with post-COVID
  • [H4] When Ali's “Little Splash’ turned into a fashion coup for the ME Association
  • [H4] The Times: My body can take no more, says ME patient starving in hospital
  • [H4] “Stronger Together” – ME/CFS Alliance 20th Anniversary Symposium at Winchester Cathedral
  • [H4] New research finds choroid plexus alterations in people with Long Covid
  • [H4] MP Tessa Munt raises issues of the lack of specialist services for those severely affected by ME/CFS
  • [H4] BBC News: New service for Highland chronic fatigue syndrome [ME/CFS] sufferers
  • [H4] More News >>
  • [H4] Without ME Connect an awful lot of patients would have no contact with the outside world and I am so grateful for your service. I’m very grateful that you give me and others a platform to talk about ME/CFS, thank you for existing!
  • [H4] Really happy with all the signposting, the service has been a big help
  • [H4] It has been really refreshing speaking to you, you help me and make me feel validated
  • [H4] I was so happy to talk to someone who understands the condition. I felt close to tears of joy, knowing you are here.
  • [H4] I’m so happy with everything you can offer; the listening ear, signposting, and helping me make sense of what steps are available. I’m really glad I called.
  • [H4] I wasn’t aware of any of the resources and groups that are available. I’m so happy I called and will call again – I found the experience a lot less daunting than I expected, and very useful.
  • [H4] I am so grateful for having someone to call and be there and listen – you are more than just a helpline. Please pass my appreciation on for everything you do.
  • [H4] Thank you so much.  You've given me way more than I was expecting, some concrete information and tools so now I feel more confident and like I can be in the driving seat.  It's really fantastic information (on the website).
  • [H4] You've been the nicest people to listen to me in a long while
  • [H4] Thank you very much.  I feel very relieved that I've spoken with you.  There's lots of information to go through which will really help me. Thank you.
  • [H4] I can't tell you how much this means to me to talk to someone… this has been very lonely and difficult. I'm very grateful to you and the organisation for being there.
  • [H4] I can tell you anything, I’m so happy I can call you for support
  • [H4] Talking has really lifted my mood and brightened my day up
  • [H4] I’m happy to have been listened to
  • [H4] If people treated me and listened to me like you are now, I'd feel so much more comfortable
  • [H4] Talking to you has made my day
  • [H4] I really appreciated the chat, and the signposting to places that can support me through this issue
  • [H4] I’m so happy to have someone who could listen and understand and make me feel heard
  • [H4] I’m so happy to have an understanding ear 
  • [H4] I’m so appreciative of having someone listen with empathy and be able give me support
  • [H4] I really appreciate the helpline service and being able to chat to knowledgeable volunteers
  • [H4] I’m very grateful for the chat. One day I would love to be able to volunteer.
  • [H4] I’m very glad there is someone to talk to who understands
  • [H4] I’m so grateful that there is your phone line to talk to. I really appreciate that I could speak to someone who gets the condition
  • [H4] I would like to compliment the whole team at the ME Association especially Dr Shepherd. The information and guidance you share is comprehensive and really helps me cope with ME/CFS.
  • [H4] The ‘Essential' magazine gets better and better; the presentation is very clear and the content easy to read. I am particularly interested in the research news, ‘ask the doctor', and management. It is informative and very encouraging.
  • [H4] To all of the founders and staff of the ME Association, I just want to offer a sincere thanks for the incredible useful and well laid out information available on your website. Thank you, sincerely for your contribution.
  • [H4] The online information provided is so thorough, accessible and is laid out in such a user friendly way. You have given me a guidepost now to seek diagnosis and, hopefully, a way forward.
  • [H4] I have been a member for 18 years and just want to send you all a special thank you for all your hard work and support, especially the hope you create that one day there will be a cure for this horrible illness. A very special thank you to Dr Shepherd and his colleagues for insisting NICE keep the revised guidelines.
  • [H4] Thank you so much for the Covid priority template letter for GPs. I  sent your template letter to my GP and got a call the next day to book my vaccination.
  • [H4] Being a member of the MEA stops me from feeling so alone. It is a very strong advocate for patients.
  • [H4] NEW FREEPHONE NUMBER0808 801 0484
  • [H5] Please donate today so we can provide support and bring hope to people with ME/CFS & Long COVID
  • [H5] Contact ME Connect by phone, emailor social media private message

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Anchor Type Juice
Skip to content Interno Passing Juice
About Us Interno Passing Juice
Learn More Interno Passing Juice
Membership Interno Passing Juice
Get Involved Interno Passing Juice
Support Interno Passing Juice
Research Interno Passing Juice
Literature Interno Passing Juice
Medical Matters Interno Passing Juice
Donate Interno Passing Juice
Rosetta Stone Study – Summary: Three month update Interno Passing Juice
Feedback required on medication for pain in ME/CFS Interno Passing Juice
Sue’s set to blaze a trail that brings hugs to everyone with ME/CFS! Interno Passing Juice
News Medical: Study identifies antiviral protein IFN-γ as a potential biomarker for Long COVID fatigue Interno Passing Juice
The ME Association – Governance Review Update and Organisational Structure: February 2026   Interno Passing Juice
Forward ME: AGM and Guest Lecture, register to attend! Interno Passing Juice
BBC Radio 4: Is the tide turning on ME research? Interno Passing Juice
DHSC Delivery Plan: Actions for NHS England and the Royal College of Physicians Interno Passing Juice
UK ME/CFS Biobank HHV-6 Study: Recruitment in its Final Phase Interno Passing Juice
Update: UK ME/CFS Biobank Steering Group Interno Passing Juice
An Essay on Living with Severe ME Interno Passing Juice
NIHR/MRC Post-Infection Conditions Research Showcase Report Interno Passing Juice
New MEA‑Funded Study: Searching for Biological Markers in ME/CFS and Long Covid  Interno Passing Juice
Medical Xpress: Study shows impaired energy metabolism in the brains of people with post-COVID Interno Passing Juice
When Ali's “Little Splash’ turned into a fashion coup for the ME Association Interno Passing Juice
The Times: My body can take no more, says ME patient starving in hospital Interno Passing Juice
“Stronger Together” – ME/CFS Alliance 20th Anniversary Symposium at Winchester Cathedral Interno Passing Juice
New research finds choroid plexus alterations in people with Long Covid Interno Passing Juice
MP Tessa Munt raises issues of the lack of specialist services for those severely affected by ME/CFS Interno Passing Juice
BBC News: New service for Highland chronic fatigue syndrome [ME/CFS] sufferers Interno Passing Juice
Mission Statement Interno Passing Juice
Policies and Documents Interno Passing Juice
Reports & Accounts at Charity Commission Externo Passing Juice
ME Association data protection and privacy policy Interno Passing Juice

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read 21
february 18
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