bleeding.org

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National Bleeding Disorders Foundation, formerly NHF | National Bleeding Disorders Foundation

 Generated on March 06 2026 20:08 PM

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National Bleeding Disorders Foundation, formerly NHF | National Bleeding Disorders Foundation

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Description

NBDF is committed to curing blood & bleeding disorders, preventing complications, and empowering individuals & families through research, education & advocacy.

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National Bleeding Disorders Foundation, blood disorders, types, hemophilia A, hemophilia B, von Willebrand disease, VWD, other factor deficiencies, NBDF, NHF

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Property Content
site_name NBDF
url https://www.bleeding.org/national-bleeding-disorders-foundation-formerly-nhf
title National Bleeding Disorders Foundation, formerly NHF | NBDF
description NBDF is committed to curing blood & bleeding disorders, preventing complications, and empowering individuals & families through research, education & advocacy.
image https://www.bleeding.org/sites/default/files/styles/crop_1440x570/public/image/Educate_to_Elevate_Pillar_Banner_Image.jpg?itok=nsU4CaXY

Headings

H1 H2 H3 H4 H5 H6
2 65 1 0 0 0
  • [H1] Connect with people who understand what you’re going through.
  • [H1] Connect with people who understand what you’re going through.
  • [H2] Top area menu
  • [H2] Main navigation
  • [H2] Who lives with a bleeding disorder in the US?
  • [H2] News & Resources
  • [H2] Connect with Us
  • [H2] TCS NYC Marathon
  • [H2] Bleeding Disorders Conference
  • [H2] Partner Event: THSNA Conference 2026
  • [H2] Alaska Hemophilia Association
  • [H2] Arizona Bleeding Disorders
  • [H2] Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado
  • [H2] Bleeding Disorder Foundation of Washington
  • [H2] Bleeding Disorders Alliance Illinois
  • [H2] Bleeding Disorders Alliance of North Dakota
  • [H2] Bleeding Disorders Association of Northeastern New York
  • [H2] Bleeding Disorders Association of South Carolina
  • [H2] Bleeding Disorders Foundation of Florida
  • [H2] Bleeding Disorders Foundation of North Carolina
  • [H2] Bleeding Disorders of Kentucky
  • [H2] Bleeding Disorders of the Heartland
  • [H2] Central California Bleeding Disorders Foundation
  • [H2] Colorado Chapter, National Bleeding Disorders Foundation
  • [H2] Eastern Pennsylvania Bleeding Disorders Foundation
  • [H2] Florida Bleeding Disorders Association
  • [H2] Gateway Bleeding Disorders Association
  • [H2] Great Lakes Hemophilia Foundation
  • [H2] Greater Ohio Bleeding Disorders Foundation
  • [H2] Hawaii Chapter, National Bleeding Disorders Foundation
  • [H2] Hemophilia Association of New Jersey
  • [H2] Hemophilia Association of San Diego County
  • [H2] Hemophilia Association of the Capital Area
  • [H2] Hemophilia Foundation of Michigan
  • [H2] Hemophilia Foundation of Southern California
  • [H2] Hemophilia of Georgia
  • [H2] Hemophilia of Indiana
  • [H2] Idaho Chapter, National Bleeding Disorders Foundation
  • [H2] Kentucky Hemophilia Foundation
  • [H2] Lone Star Bleeding Disorders Foundation
  • [H2] Louisiana Hemophilia Foundation
  • [H2] Mary M. Gooley Hemophilia Center
  • [H2] Midwest Hemophilia Association
  • [H2] Nebraska Chapter, National Bleeding Disorders Foundation
  • [H2] Nevada Chapter, National Bleeding Disorders Foundation
  • [H2] New England Hemophilia Association
  • [H2] New York City Hemophilia Chapter Inc.
  • [H2] Northern California Bleeding Disorders Foundation
  • [H2] Northwest Ohio Hemophilia Foundation
  • [H2] Oklahoma Hemophilia Foundation
  • [H2] Pacific Northwest Bleeding Disorders
  • [H2] Rocky Mountain Bleeding Disorders Association
  • [H2] Sangre de Oro, Bleeding Disorders Foundation of New Mexico
  • [H2] Southwestern Ohio Hemophilia Foundation
  • [H2] Tennessee Hemophilia and Bleeding Disorders Foundation
  • [H2] Texas Central Bleeding Disorders
  • [H2] Tri-State Bleeding Disorder Foundation
  • [H2] Upper Midwest Bleeding Disorders Alliance
  • [H2] Virginia Bleeding Disorders Foundation
  • [H2] West Virginia Chapter, National Bleeding Disorders Foundation
  • [H2] Western New York BloodCare
  • [H2] Western Pennsylvania Bleeding Disorders Foundation
  • [H2] Contact us
  • [H2] About
  • [H2] Resources
  • [H2] Legal
  • [H2] Give
  • [H3] You're Not Alone

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In-page links

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Anchor Type Juice
Skip to main content Internal Passing Juice
News Internal Passing Juice
Events Internal Passing Juice
- External Passing Juice
- External Passing Juice
- External Passing Juice
- External Passing Juice
- External Passing Juice
- External Passing Juice
- Internal Passing Juice
Subscribe Internal Passing Juice
Our Story Internal Passing Juice
Mission & History Internal Passing Juice
What We Do Internal Passing Juice
What Do We Value? Internal Passing Juice
Health Access Internal Passing Juice
NBDF Reports Internal Passing Juice
Financial Statements Internal Passing Juice
Media Newsroom Internal Passing Juice
Educate to Elevate Internal Passing Juice
The National Hemophilia Foundation Has a New Name Internal Passing Juice
The Red Thread: 75th Anniversary Celebration Internal Passing Juice
Our Team Internal Passing Juice
Staff Internal Passing Juice
Board of Directors Internal Passing Juice
MASAC Internal Passing Juice
Meet the NYLI Internal Passing Juice
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The ACT Initiative Internal Passing Juice
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CDC Coop Agreement Internal Passing Juice
Pathway to Cures External Passing Juice
Careers Internal Passing Juice
Career Opportunities External Passing Juice
Volunteer Opportunities Internal Passing Juice
Overview Internal Passing Juice
Fast Facts Internal Passing Juice
What is a Bleeding Disorder? Internal Passing Juice
History Internal Passing Juice
Types of Bleeds Internal Passing Juice
Inhibitors Internal Passing Juice
Women and Bleeding Disorders Internal Passing Juice
Types Internal Passing Juice
Hemophilia A Internal Passing Juice
Hemophilia B Internal Passing Juice
Von Willebrand Disease Internal Passing Juice
Other Factor Deficiencies Internal Passing Juice
Inherited Platelet Disorders Internal Passing Juice
Treatment Internal Passing Juice
Comprehensive Medical Care Internal Passing Juice
MASAC For You Internal Passing Juice
Treatment Guidelines (MASAC) Internal Passing Juice
Current Treatments Internal Passing Juice
Innovative Therapies Internal Passing Juice
Clinical Trials Internal Passing Juice
Shared Decision-Making Internal Passing Juice
Hemophilia Treatment Centers External Passing Juice
Healthcare Coverage Internal Passing Juice
Choosing an Insurance Plan Internal Passing Juice
Private Insurance Internal Passing Juice
Public Insurance Internal Passing Juice
Health Insurance Toolkit Internal Passing Juice
Education Internal Passing Juice
Bleeding Disorders Conference Internal Passing Juice
Inhibitor Education Internal Passing Juice
Steps for Living Internal Passing Juice
Online Education Internal Passing Juice
Rare Bleeding Disorders Internal Passing Juice
Von Willebrand Disease Internal Passing Juice
Mental Health Internal Passing Juice
Gene and Innovative Therapies Internal Passing Juice
Women Internal Passing Juice
Educational Programming Internal Passing Juice
Clotting Cascade Internal Passing Juice
Training Internal Passing Juice
Youth Leadership (NYLI) Internal Passing Juice
Outreach Internal Passing Juice
THRIVE Internal Passing Juice
THRIVE - en español Internal Passing Juice
Undiagnosed Internal Passing Juice
Guías Culturales Internal Passing Juice
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Access to Care Internal Passing Juice
Federal Programs Internal Passing Juice
Medicare Internal Passing Juice
Medicaid Internal Passing Juice
Blood & Blood Product Safety Internal Passing Juice
Make All Copays Count Internal Passing Juice
State Priorities Internal Passing Juice
Utilization Management Internal Passing Juice
Patient Out-of-Pocket Expenses Internal Passing Juice
Medicaid Internal Passing Juice
How You Can Take Action Internal Passing Juice
Voices for Policy Change! Internal Passing Juice
Washington Days Internal Passing Juice
Advocacy Do’s and Don’ts Internal Passing Juice
6 Steps for Grassroots Advocacy Internal Passing Juice
Tell Your Story Internal Passing Juice
Managed Care & Payers Internal Passing Juice
Collaborating on Coverage Internal Passing Juice
Quality of Care Guidelines Internal Passing Juice
CME/CE Webcast Series External Passing Juice
Educational Web Portal External Passing Juice
Quality Improvement & Cost Management External Passing Juice
Research Projects Internal Passing Juice
Foundation Research Internal Passing Juice
Funded by Foundation Internal Passing Juice
Presented at Our Conference Internal Passing Juice
Research Journal Club Internal Passing Juice
Research Roundtable Internal Passing Juice
coreHem Mental Health Tool Internal Passing Juice
Fund Your Research Internal Passing Juice
Judith Graham Pool Postdoctoral Research Fellowship Internal Passing Juice
NBDF-Sanofi Career Development Award Internal Passing Juice
Nursing Excellence Fellowship Internal Passing Juice
Physical Therapy Excellence Fellowship Internal Passing Juice
Social Work Excellence Fellowship Internal Passing Juice
Community Voices in Research Internal Passing Juice
What is CVR? Internal Passing Juice
How & Why Should I Participate? Internal Passing Juice
Impact on Research Internal Passing Juice
Frequently Asked Questions External Passing Juice
Login to CVR External Passing Juice
Bleeding Disorders Research Collaborative Internal Passing Juice
What is the Bleeding Disorders Research Collaborative? Internal Passing Juice
The BDRC Structure and Research Priorities Internal Passing Juice
Lived Experience Experts (LEEs) Leading the Way Internal Passing Juice
How to Get Involved Internal Passing Juice
Our Journey Together Internal Passing Juice
BDRC Resources Internal Passing Juice
Guidelines on Care Internal Passing Juice
MASAC Minutes Internal Passing Juice
Products Licensed (US) Internal Passing Juice
Emergency Management Internal Passing Juice
Snapshots of VWD Guidelines Internal Passing Juice
Education & Resources Internal Passing Juice
NBDF-Takeda Clinical Fellowship Program Internal Passing Juice
NBDF’s Collaborative Learning Exchange Internal Passing Juice
Online Education for Providers Internal Passing Juice
Live & Online Learning (Partners) Internal Passing Juice
Rare Coagulation Resource Room Internal Passing Juice
Peer-reviewed Journals Internal Passing Juice
NBDF Publications Internal Passing Juice
Other Associations Internal Passing Juice
Allied Healthcare Internal Passing Juice
Nursing Internal Passing Juice
Physical Therapy Internal Passing Juice
Social Work Internal Passing Juice
Request Information Internal Passing Juice
Contact Us Internal Passing Juice
The Neil Frick Resource Center Internal Passing Juice
Read Our Publications Internal Passing Juice
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Get HemAware Magazine External Passing Juice
Newsletter Archive Internal Passing Juice
Wednesday Webinar Series Internal Passing Juice
Resources Near You Internal Passing Juice
Chapters Internal Passing Juice
Bleeding Disorders Camps Internal Passing Juice
Financial Assistance Internal Passing Juice
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More than a Donation Internal Passing Juice
Create Your Own Fundraiser Internal Passing Juice
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Matching Gifts Internal Passing Juice
Who We Are Internal Passing Juice
Bleeding Disorders A-Z Internal Passing Juice
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Advocacy Internal Passing Juice
Research Internal Passing Juice
Healthcare Professionals Internal Passing Juice
Community Resources Internal Passing Juice
Make a Difference Internal Passing Juice
NBDF’s Established Initiatives & Impact > Internal Passing Juice
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Join Community Research Internal Passing Juice
NBDF Launches Matching Grant with Save One Life Internal Passing Juice
Dr. Michael Recht Appointed Chief Medical and Scientific Advisor for Pathway to Cures Internal Passing Juice
BioMarin Pulls ROCTAVIAN Hemophilia A Gene Therapy from U.S. Market Internal Passing Juice
NBDF Honors the Life of Lynn Malec, MD, MSc Internal Passing Juice
Government Relations Update - January 2026 Internal Passing Juice
NBDF’s Research Grant Cycle is Now Accepting Applications Internal Passing Juice
NBDF’s Commitment to Shared Decision-Making and Evidence-Based Access in Gene Therapy Internal Passing Juice
NBDF Announces Research Grant Awardees Internal Passing Juice
Government Relations Update - December 2025 Internal Passing Juice
NBDF and WFH statement on severe adverse event with marstacimab rebalancing agent for hemophilia Internal Passing Juice
NBDF Announces 2025 Kevin Child Scholarship Winner Internal Passing Juice
Trial Results for Investigational Glanzmann Thrombasthenia Therapy Presented at ASH Internal Passing Juice
HELP Copays Act Reintroduced to Improve Patient Access Internal Passing Juice
Five Year Hemgenix® Hemophilia B Trial Data Published in NEJM Internal Passing Juice
, , New York City, New York External Passing Juice
, , Orlando, Florida External Passing Juice
777 NE Martin Luther King, Jr. Blvd, , Portland, Oregon 97232 External Passing Juice
Alaska Hemophilia Association Internal Passing Juice
Arizona Bleeding Disorders Internal Passing Juice
Asociación Puertorriqueña de Hemofilia y Condiciones de Sangrado Internal Passing Juice
Bleeding Disorder Foundation of Washington Internal Passing Juice
Bleeding Disorders Alliance Illinois Internal Passing Juice
Bleeding Disorders Alliance of North Dakota Internal Passing Juice
Bleeding Disorders Association of Northeastern New York Internal Passing Juice
Bleeding Disorders Association of South Carolina Internal Passing Juice
Bleeding Disorders Foundation of Florida Internal Passing Juice
Bleeding Disorders Foundation of North Carolina Internal Passing Juice
Bleeding Disorders of Kentucky Internal Passing Juice
Bleeding Disorders of the Heartland Internal Passing Juice
Central California Bleeding Disorders Foundation Internal Passing Juice
Colorado Chapter, National Bleeding Disorders Foundation Internal Passing Juice
Eastern Pennsylvania Bleeding Disorders Foundation Internal Passing Juice
Florida Bleeding Disorders Association Internal Passing Juice
Gateway Bleeding Disorders Association Internal Passing Juice
Great Lakes Hemophilia Foundation Internal Passing Juice
Greater Ohio Bleeding Disorders Foundation Internal Passing Juice
Hawaii Chapter, National Bleeding Disorders Foundation Internal Passing Juice
Hemophilia Association of New Jersey Internal Passing Juice
Hemophilia Association of San Diego County Internal Passing Juice
Hemophilia Association of the Capital Area Internal Passing Juice
Hemophilia Foundation of Michigan Internal Passing Juice
Hemophilia Foundation of Southern California Internal Passing Juice
Hemophilia of Georgia Internal Passing Juice
Hemophilia of Indiana Internal Passing Juice
Idaho Chapter, National Bleeding Disorders Foundation Internal Passing Juice
Kentucky Hemophilia Foundation Internal Passing Juice
Lone Star Bleeding Disorders Foundation Internal Passing Juice
Louisiana Hemophilia Foundation Internal Passing Juice
Mary M. Gooley Hemophilia Center Internal Passing Juice
Midwest Hemophilia Association Internal Passing Juice
Nebraska Chapter, National Bleeding Disorders Foundation Internal Passing Juice
Nevada Chapter, National Bleeding Disorders Foundation Internal Passing Juice
New England Hemophilia Association Internal Passing Juice
New York City Hemophilia Chapter Inc. Internal Passing Juice
Northern California Bleeding Disorders Foundation Internal Passing Juice
Northwest Ohio Hemophilia Foundation Internal Passing Juice
Oklahoma Hemophilia Foundation Internal Passing Juice
Pacific Northwest Bleeding Disorders Internal Passing Juice
Rocky Mountain Bleeding Disorders Association Internal Passing Juice
Sangre de Oro, Bleeding Disorders Foundation of New Mexico Internal Passing Juice
Southwestern Ohio Hemophilia Foundation Internal Passing Juice
Tennessee Hemophilia and Bleeding Disorders Foundation Internal Passing Juice
Texas Central Bleeding Disorders Internal Passing Juice
Tri-State Bleeding Disorder Foundation Internal Passing Juice
Upper Midwest Bleeding Disorders Alliance Internal Passing Juice
Virginia Bleeding Disorders Foundation Internal Passing Juice
West Virginia Chapter, National Bleeding Disorders Foundation Internal Passing Juice
Western New York BloodCare Internal Passing Juice
Western Pennsylvania Bleeding Disorders Foundation Internal Passing Juice
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Our Team Internal Passing Juice
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Fundraise Internal Passing Juice
Other Ways to Give Internal Passing Juice
Why Give? Internal Passing Juice
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