Webside score myotubulartrust.org
Myotubular Trust, Centronuclear Myopathy, TITIN, RYR1
Genereret April 10 2026 05:58 AM
Gammel data? OPDATER !
Scoren er 49/100
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Titel
Myotubular Trust, Centronuclear Myopathy, TITIN, RYR1
Længde : 53
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Beskrivelse
Myotubular Trust, research and funding for centronuclear myopathy as well as supporting families experiencing this life threatening disability
Længde : 142
Perfekt, din meta beskrivelse indeholder mellem 70 og 160 karakterer.
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Og Meta Egenskaber
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| Egenskab | Indhold |
|---|---|
| locale | en_US |
| type | website |
| title | Myotubular Trust, Centronuclear Myopathy, TITIN, RYR1 |
| description | Myotubular Trust, research and funding for centronuclear myopathy as well as supporting families experiencing this life threatening disability |
| url | https://myotubulartrust.org/ |
| site_name | Myotubular Trust |
| updated_time | 2025-10-24T09:43:04+00:00 |
| image | https://myotubulartrust.org/wp-content/uploads/mt-logo-social.jpg |
| image:secure_url | https://myotubulartrust.org/wp-content/uploads/mt-logo-social.jpg |
| image:width | 1200 |
| image:height | 630 |
| image:alt | Myotubular Trust logo social media |
| image:type | image/jpeg |
Overskrifter
| H1 | H2 | H3 | H4 | H5 | H6 |
| 1 | 13 | 1 | 15 | 0 | 0 |
- [H1] How we make a difference
- [H2] Find out more…
- [H2] WHAT WE DO
- [H2] Factsheets
- [H2] HELP BY BECOMING A FUNDRAISING HERO?
- [H2] Recent Research
- [H2] 2025 LIVERPOOL HOPE WALK
- [H2] THE LONDON 2025 HOPE WALK
- [H2] Latest News…
- [H2] New research brings hope for myotubular myopathy, by revealing how muscle cells control their growth
- [H2] Watch the Safe Swallow Webinar Recording, January 2026
- [H2] Families and friends unite for the Liverpool and London Hope Walks, 2025
- [H2] Patient Registry
- [H2] Privacy settings
- [H3] With the slider, you can enable or disable different types of cookies:
- [H4] TRENDING:
- [H4]
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- [H4]
- [H4] This website will:
- [H4] This website won't:
- [H4] This website will:
- [H4] This website won't:
- [H4] This website will:
- [H4] This website won't:
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- [H4] This website won't:
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- [H4] This website won't:
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Text/HTML balance
Balance : 2%
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On-page links
Vi fandt et total af 61 links inkluderende 0 link(s) til filer
| Anker | Type | Juice |
|---|---|---|
| Collaboration With Leading Research Charity | Intern | Sender Juice |
| New research brings hope for myotubular myopathy, by re... | Intern | Sender Juice |
| Interesting Findings In Dr Piercy’s Research Proj... | Intern | Sender Juice |
| - | Ekstern | Sender Juice |
| Home | Intern | Sender Juice |
| Contact Us | Intern | Sender Juice |
| About | Intern | Sender Juice |
| Myotubular & Centronuclear Myopathy | Intern | Sender Juice |
| What we do | Intern | Sender Juice |
| People behind the trust | Intern | Sender Juice |
| Newsletters | Intern | Sender Juice |
| Contact | Intern | Sender Juice |
| Research News | Intern | Sender Juice |
| Accelerating Treatments | Intern | Sender Juice |
| Clinical Overview | Intern | Sender Juice |
| Publications | Intern | Sender Juice |
| Trials & Studies | Intern | Sender Juice |
| Patient Registry | Intern | Sender Juice |
| Scientific Advisory Board | Intern | Sender Juice |
| Grant Funding | Intern | Sender Juice |
| Glossary | Intern | Sender Juice |
| Patient Stories | Intern | Sender Juice |
| Factsheets | Intern | Sender Juice |
| Getting a Diagnosis | Intern | Sender Juice |
| Managing the Conditions | Intern | Sender Juice |
| ‘Carriers’ of X-Linked Myotubular Myopathy | Intern | Sender Juice |
| Patient Registry | Intern | Sender Juice |
| Family conference 2018 | Intern | Sender Juice |
| Other organisations | Intern | Sender Juice |
| Fundraising News | Intern | Sender Juice |
| Design your own | Intern | Sender Juice |
| Regular donations | Intern | Sender Juice |
| Companies | Intern | Sender Juice |
| Hope walk weekend | Intern | Sender Juice |
| Schools | Intern | Sender Juice |
| Volunteer | Intern | Sender Juice |
| Ebay | Intern | Sender Juice |
| Shopping | Ekstern | Sender Juice |
| READ MORE... | Intern | Sender Juice |
| READ MORE... | Intern | Sender Juice |
| READ MORE... | Intern | Sender Juice |
| READ MORE... | Intern | Sender Juice |
| READ MORE... | Intern | Sender Juice |
| Watch the Safe Swallow Webinar Recording, January 2026 | Intern | Sender Juice |
| Privacy & Cookies Policies | Intern | Sender Juice |
| Myotubular Trust | Ekstern | Sender Juice |
| View on Facebook | Ekstern | Sender Juice |
| Share | Ekstern | Sender Juice |
| mailchi.mp/myotubulartrust/join-us-in-our-20th-birthday-year-17997130 | Ekstern | Sender Juice |
| View on Facebook | Ekstern | Sender Juice |
| Share | Ekstern | Sender Juice |
| Diet and gene therapy together may affect liver health in a rare muscle condition | Ekstern | Sender Juice |
| View on Facebook | Ekstern | Sender Juice |
| Share | Ekstern | Sender Juice |
| View on Facebook | Ekstern | Sender Juice |
| Share | Ekstern | Sender Juice |
| www.royalparkshalf.com/ | Ekstern | Sender Juice |
| in.reg-royalparkshalf.com | Ekstern | Sender Juice |
| View on Facebook | Ekstern | Sender Juice |
| Share | Ekstern | Sender Juice |
| Website design | Ekstern | Sender Juice |
SEO Nøgleord
Nøgleords cloud
myotubular more myopathy share comments facebook research see view trust
Nøgleords balance
| Nøgleord | Indhold | Titel | Nøgleord | Beskrivelse | Overskrifter |
|---|---|---|---|---|---|
| share | 26 |  |
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| myotubular | 15 |  |
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| comments | 11 | |
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| view | 10 | |
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Brugervenlighed
Link
Domæne : myotubulartrust.org
Længde : 19
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